Weezie

The latest:

Hi all –

I’m happy to be writing you from home with Eloise right next to me. Although they haven’t been able to diagnose her condition, the doctors felt she could come home until the hematologists at MUSC begin caring for her on Tuesday. So, we were able to bring her home with heart and breathing monitors that make hideous noises when things get out of whack (which hopefully won’t be often).

As of this morning, her H and H numbers remain unchanged (good that it’s no longer declining, but still too low for comfort). Her PKU (newborn screening) came back normal which rules out a lot. More tests results are pending and more will be taken beginning next week. Unless something changes or we get a diagnosis, I’ll probably hold off on updates since we will probably not have anything new until Tuesday. Eloise continues to do everything normally – eat, sleep etc. so we’re hopeful her blood will begin healing itself soon even if that means we never find out why this happened.

Thank you all for your continued support and prayers,

Adam